Annotated Bibliography
Health Care Transition of Youth with Special Health Care Needs
 



Work Groups and Project Staff

 
HP2010 Transition Workgroup Co-Chairs
   
Tom Gloss John Reiss
Public Health Policy Analyst Director of Policy and Program Affairs
Division of Services for CSHCN Institute For Child Health Policy
Maternal & Child Health Bureau, 5700 SW 34 St., Suite 323
HRSA, DHHS Gainesville, FL 32608-5367
5600 Fishers Lane Tel: 352-392-5904 x 224
Parklawn Building, Room 18A-18 Fax: 352-392-8822
Rockville, MD 20857 jgr@ichp.edu
Tel: 301-443-9775
Fax: 301-443-1728 Patti Hackett
tgloss@hrsa.gov Executive Team Leader
Hackett Solutions
  3151 NW 44th Ave, #143
Ocala, FL 34482
352-207-6808
patti@hackettsolutions.com
   

HP2010 Transition Workgroup Members

   
Louis Aledort Jan Brunstrom
The Mary Weinfeld Professor of Assistant Professor of Neurology
Clinical Research in Hemophilia Washington University School of Medicine
Mount Sinai Medical Center Director of
One Gustave L. Levy Place Pediatric Neurology Cerebral Palsy Center
Box 1006 St. Lois Children's Hospital
New York, NY 10029-6574 One Children's Place, Room 12E25
Tel: 212-241-7971 St. Lois, MO 63110
Fax: 212-987-3326 Tel: 314-454-6120
louis.aledort@mssm.edu  Fax: 314-454-2523
jbrunstr@cellbio.wustl.edu 
Tawara Goode 
Project Director Karen Hein 
National Cultural Competency Center President
Georgetown University WT Grant Foundation
Child Development Center 570 Lexington Avenue, 18th floor
3307 M Street, Suite 401 New York, NY 10022-6837
Washington, DC 20007-3935 Tel: 212-752-0071
Tel: 202-687-8807 Fax: 212-752-1398
Fax: 202-687-8899 khein@wtgrantfdn.org 
goodet@gunet.georgetown.edu
Linda Mona
Ann Marks  Research Associate
Executive Director World Institute on Disability
Commission for CSHCN 510 16th Street, Ste 100
982 Eastern Parkway Oakland, CA 94612
Louisville, KY 40217 Tel: 510-251-4333
Tel: 502-595-4459 ext. 271 Voice Mail: 510-208-9493
Fax: 502-595-4673 Fax: 510-783-4109
ann.marks@mail.state.ky.us  lindam@wid.org
Kwaku Ohene-Frempong  Joseph Telfair
Professor of Pediatrics Associate Professor
University of Pennsylvania Department of Maternal & Child Health
Directoir, Comprehensive Sickle Cell Center School of Public Health
The Children's Hospital of Philadelphia University of Alabama @ Birmingham
34th Street and Civic Center Boulevard 1665 University Boulevard, Ste 320
Philadelphia, PA 19104-4399 Birmingham, AL 35294-0022
Tel: 215-590-3423/2499 Tel: 205-934-7161
Fax: 215-590-3992 Fax: 205-934-8248
ohene-frempong@email.chop.edu  JTelfair@ms.soph.uab.edu 
Conni Wells
Family Voices Coordinator
Florida Institute for Family Involvement
Home of Family Voices-
Florida & the Federation of Families for
Children's Mental Health
3927 Spring Creek Highway
Crawfordville, FL 32327
Tel: 850-245-4444 ext 2257 
Voice mail: 850-309-3020
Pager: 850-531-3367 
Fax: 850-926-6190
cjwells@sprynet.com 
   
 HP2010 Transition Workgroup Staff
   
Kay Hughes  Deanna Dearholt-Lamar
Health Policy Associate Coordinator of Health Policy
Institute for Child Health Policy Institute for Child Health Policy
Center for Policy & Program Affairs Center for Policy & Program Affairs
5700 SW 34th Street, Suite 323 5700 SW 34th Street, Suite 323
Gainesville, Fl 32608-5367 Gainesville, Fl 32608-5367
Tel: 352-392-5904  Tel: 352-392-5904 x 263
Fax: 352-392-8822 Fax: 352-392-8822
Toll free: 1-888-433-1851 Toll free: 1-888-433-1851
ddl@ichp.edu
   

HRTW Projects

   
California Healthy and Ready to Work Center for Policy and Partnerships
Cecily L. Betz, RN, PhD, FAAN Maximizing Transition Opportunities for
cbetz@usc.edu Youth CSHCN
USC Department of Nursing John Reiss, Ph.D., Center Director
1540 Alcazar St. CHP 222 jgr@ichp.edu 
Los Angeles, California 90089-9012 Institute for Child Health Policy
323-442-1868 5700 SW 34th St., Suite 323
Fax 323-442-1887 Gainesville, FL 32608-5367
http://www.cahrtw.org 888-433-1851, ext. 224
Fax 352-392-8822
(Iowa) Adolescent Transition: HRTW http://www.mchbhrtw.org
Jeffrey Lobas, M.D.
Jeffrey-Lobas@uiowa.edu KY Teach Project 
Iowa Child Health Specialty Clinics  Kentucky Youth Transitioning to
University of Iowa 100 Hawkins Drive  Employment and Comprehensive Healthcare
University Hospital School  Beverly Hampton, Executive Staff Advisor
Iowa City, IA 52242 Beverly.Hampton@mail.state.ky.us
319-356-1118 Kentucky Commission for CSHCN
http://www.medicine.uiowa.edu/hrtw 982 Eastern Parkway
Louisville, KY 40217
Louisiana: Healthy and Ready to Work 505-595-4459, x285
Jane M. Everson, Ph.D. Fax 502-595-4673
Jeverson@hdc.lsumc.edu http://cfc-chs.chr.state.ky.us/index.htm 
LSU Health Sciences Center,
Human Development Center Maine Adolescent Transition Partnership
1100 Florida Avenue, Building #119 Toni G. Wall
New Orleans, LA 70119-2799 toni.g.wall@state.me.us
504-942-8245 Department of Human Services,
Fax 504-942-5908 Bureau of Health
http://www.hdc.lsumc.edu 11 State House Station
Augusta, Maine 04333-0011
Massachusetts Initiative for Youth 207-287- 5139, X5350 
with Disabilities Fax 207-287- 5355
Deborah Allen, ScD http://www.ume.maine.edu/matp.html
Massachusetts Department of Public Health
Division for Special Health Needs (DSHN) (Minnesota)
250 Washington Street, 4th floor Ready 2 Work:
Boston, MA 02108 Family Centered Community Transition Services 
617-624-5070 (FACCTS) Phase II Implementation
http://www.state.ma.us/dph/shcn/miyd.htm Paula Goldberg
pgoldberg@pacer.org
(Ohio) HRTW, Career Connections for Students PACER Center
Carol K. Igoe 4826 Chicago Avenue, South
cigoe@pol.com Minneapolis, MN 55417
Lighthouse Youth Services, Inc. 612-827-2966
1501 Madison Road Fax 612-827-3065
Cincinnati, Ohio 45206 http://www.pacer.org 
513-221-2250
(Oregon)
Community Solutions Project: Building
capacities to support the transition of youth
withspecial health needs from diverse cultures
 to independence and employment. 
Laurie E.Powers, Ph.D., PI
powersl@ohsu.edu
Oregon Health Sciences University
Oregon Institute on Disability and Development
Center on Self-Determination
3608 SE. Powell Blvd.
Portland, Oregon 97202
503-232-9154, ext. 104
Fax 503- 232-6423 

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